Tuesday, 29 January 2013
Where's That Groundhog?
At last we have a day dedicated to raising awareness of Rheumatoid Disease! I am sure that this accomplishment did not occur overnight. Congratulations to Kelly Young, @RAWarrior ,on this huge achievement that obviously took a great deal of sustained effort. Here's the press release.
We hope that this will help to raise awareness of RAD in new areas and the more awareness we can spread the better it will be for all of us now, and those to come in the future.
Unfortunately Rheumatoid Arthritis Disease can't be treated as though we were in the movie "Groundhog Day" where we can work on our skills and refine our treatments until we achieve success and then are rewarded with a healthy normal life once we get it right. Bill Murray had time to perfect all of his skills by repetition. Not like us.
When we pop out of our burrows with RAD, whether the doctor sees the shadow (RAD) and treats it, or doesn't see it and we wait longer, the reaction is vital to us.
Ideally fast treatment that is the "right" one for us affects our lives dramatically, much more than the length of our winter this year will. This is our life that we are talking about here.
Awareness is important at all levels, from parents, to friends, to doctors who may not readily recognize this tricky disease. Lack of knowledge may cause you to miss that narrow window where the right treatment could bring you into remission.
For too many of us we just don't have time to get a chronic complex disease, or we believe doctors who insinuate that it is all in our minds, or just due to our circumstances.
After all, we know we can cope with life - we've been doing it all along. It takes something like being unable to get out of bed in the morning, or falling asleep over dinner to convince us that there's a problem. Some of us realize things aren't right when we notice we're sleeping longer than our cats
or other pets (The dog wants in)
So I would urge everyone to build on Kelly's success and to spread awareness of RAD through articles, blogs, passing on the press release, an even getting articles in church bulletins. This infographic/poster called RA Symptom's: A Patients Perspective in particular lays out symptom details very effectively for anyone to understand.
In the meantime I am going to try to be like this little fellow and hope that arming myself with knowledge will help me cut though all of the obstacles and shadows that will face me in the future.