For both of them decisions about health care and future possibilities are almost overwhelming. In Suleika's case, though struck with a life-threatening illness, she is still covered by her parent's health insurance because of the ACA. However the number of bills and complexities of insurance are so difficult to handle that her mom has had to quit her full time job so she can handle the financial and insurance details, while Suleika concentrates on getting better, at least for the next two years.
For Chronic Rants the situation sounds even more confusing with numerous choices and possibilities and no easy route to solid information and the best decision.
This is a problem that we all wish that we could help to solve and highlights an issue all too common with chronic disease.
The problem is called "decision fatigue". There are studies about this topic that show that the more we need to worry about and make decisions about in a day, the harder it is to make good decisions or any decision at all.
I have taken some information about this from a political article in Bloomberg by Ezra Klein where he quotes from a book called “Poor Economics,” by Abhijit Banerjee and Esther Duflo.
So while you are struggling with all of the other issues of chronic disease give yourself some sympathy for the burden of all of the decisions that you have to make. I thought it would help everyone to know about this issue we all face and don't even give ourselves credit for coping with.
Dealing with all of these decisions is like making sense out of a puzzle over and over every day but it's not just a pleasant distraction - it's vital to our well-being.
When it comes to finding a way to get help for health decisions getting expert advice is vital. How to find the experts is another problem.
In theory a routine ought to be helpful if only in lessening the sheer number of choices you make every day.
If there were an easy solution to this we would all be better off. Please leave ideas in the comment section.